I was diagnosed with ALS in 2005. (A-myo-tropic-lateral -Sclerosis.) Since the life expectancy for ALS is 2-3 years, I have long outlived the medical prognosis of the disease. There is no known cure for it. Also known as Lou Gehrigs disease because that amazing baseball player was diagnosed when he was only 26 and had already made baseball history with his incredible stats. He died two years later. In his farewell speech to his fans and teammates, he made a startling comment.”I consider myself the luckiest man on the face of the earth. I have been in ballparks for seventeen years and have never received anything but kindness and encouragement.” Gehrig played in 2,130 consecutive games, had 493 home runs, and 2,721 hits. The disease was named for him because of his positive way of dealing with ALS. He set the bar high for those of us living with ALS.
Like most people, I was shocked at the diagnosis, but didn’t feel any fear, because at the time, the Olympics were in full swing. While watching the games, the Lord ‘spoke’ to me and told me He was calling me to the strenuous life of an Olympic Athlete. I NEVER WAS MUCH OF AN ATHLETE. So I realized He was talking about my life with ALS and it has been a strenuous life at times.
After all these years of dealing with muscle loss, loss of speech, swallowing issues, wasting muscles, feeding tubes, flaking skin, and muscles cramps I have finally written my story, ALS MEETS CHRIST. It’s all due to the Lord’s help and lots of prayer.
I can’t include the entire story in a blog but there is humor in it, as well as the tough situations. Patients usually get either weeping or laughing symptoms. I got the laughing. I have walked a 24 K Walk for ALS; was drenched with ice water in the Ice Bucket Challenge; and mall walked until a couple months ago. I still live alone, drive, and keep my computer humming.
My other books include: God’s Mimic, (the biography of missionary Hazel Page.) An Innocent Son, and, Behold a Son, (2 fiction books set in Bethlehem at the time of Christ; The Bond Servant (fiction dealing with Reactive Attachment Disorder); A Complex Love (romance dealing with loss of loved ones). Look for them on Amazon and Kindle. Until the Lord calls me home I’ll keep on writing.